Parents of children with an undiagnosed disease tell
Every child is unique and so are the children who have undiagnosed diseases. Many have a disease that is invisible others do not but all have two things in common. The first is that they are wonderful children and the others that the doctors do not know what kind of disease the child has.
Here we offer parents to present their undiagnosed children, giving the child a chance for a doctor or researcher to get a suspicion of what your child might have for diagnosis. Want you want your child to be included, contact Wilhelm Foundation,and we will tell you more.
Are you a doctor/researcher and have a suspicion of what the child might have for the disease? Please, email or call the Wilhelm Foundation, and we will take care of you to get in touch with the child's doctor.
Freya has an undiagnosed disease
Dad Graham and mom Johanna tells:
"Freya was conceived with the help of donor (sperm) and ivf, she was very eagerly awaited.
The routine ultrasound (v16) detects that everything does not look right with her head and brain. So we knew everything wasn't quite as it should with Freya. She was in a hurry to get out of life, 8.5 weeks early she arrived and only then was her hernia discovered on her forehead.
Freya is a curious, happy and lively girl of 9 (now) years with a smile that easily rubs off."