Why a Diagnosis Matters.

For People Living With an Undiagnosed Disease (PLWUD), not having answers can be one of the most painful parts of the journey. A diagnosis is more than just a name—it's a turning point.

Clarity and Understanding

A diagnosis brings explanation to symptoms that may have been misunderstood for years, offering peace of mind and direction.

Support and Community

Being diagnosed connects people with others facing the same diagnosis and same challenges, creating space for shared experiences and mutual support.

Eligibility for Services

Many essential services, including insurance coverage, educational accommodations, and disability benefits, require a formal diagnosis.

Hope for the Future

Every diagnosis contributes to scientific understanding, enabling research that could lead to better treatments or even cures for others.

A diagnosis can change everything 

That’s why we work tirelessly to end the diagnostic odyssey for individuals and families around the world. Obtaining a diagnosis is crucial, because as long as a disease remains undiagnosed, doctors have no way of knowing what causes it.