Conferences and Meetings

Wilhelm Foundation has always placed undiagnosed diseases at the centre of its work.
Across all international engagements, our focus remains clear: advancing diagnosis, care, and equity for People Living with an Undiagnosed Disease (PLWUD).

Over the years, Wilhelm Foundation has actively contributed to high-level international meetings, conferences, and collaborative forums addressing rare and undiagnosed diseases, diagnostics, genomics, and global health equity. In every setting, we advocate for those who remain without answers, especially the 60% who still do not receive a diagnosis despite advanced genomic testing.

Our participation spans global policy discussions, scientific collaboration, and community-driven forums, ensuring that undiagnosed diseases are not treated as a subset, but as a priority within the broader rare disease landscape. From WHO-level dialogues to hands-on clinical and research collaborations, Wilhelm Foundation consistently brings the lived experience of families together with clinicians, researchers, and decision-makers to drive real change.