Helene Cederroth – International Speaker

Helene Cederroth is an internationally recognized speaker and advocate for People Living with Undiagnosed Diseases (PLWUD). As founder and chair of the Wilhelm Foundation and Co-founder of the Undiagnosed Diseases Network International (UDNI), she brings together lived experience, science, and global health policy to challenge the status quo of diagnosis. 

Driven by her personal journey of losing three children to an undiagnosed disease, Helene speaks with clarity, urgency, and compassion about why diagnosis matters, why 60% remain without answers, and how collaboration across borders and disciplines can change lives. Her talks resonate with clinicians, researchers, policymakers, patient organizations, and funders—bridging emotion and evidence to inspire action.

 

Wide view of a large auditorium filled with attendees seated in rows, listening to a speaker on stage presenting slides about people living with undiagnosed diseases. A large screen displays statistics and images related to undiagnosed conditions, highlighting global impact during an international medical or scientific conference.


Core Presentation Themes

  •  Why diagnosis changes everything

  •  The global diagnostic gap and the remaining 60%

  •   Lived experience as a catalyst for scientific innovation

  •   The Undiagnosed Hackathon as a new collaborative model

  •   Equity in diagnosis, especially in LMICs

  •   Turning grief into global action

Two people stand on a conference stage holding a framed certificate and smiling toward the camera. They are positioned in front of a large blue presentation screen with text related to undiagnosed diseases, capturing a moment of recognition during an international genetics or medical conference.

 

For more information or to book Helene as a speaker, please contact info@wilhelmfoundaton.org